New global registry aims to unlock secrets of rare brain disease DRPLA
Knowledge-focused
Recruiting now
This study is building a worldwide database of information from people with DRPLA, a rare genetic brain disorder. Researchers will collect details about symptoms, daily life, and disease impact through questionnaires filled out by patients or their caregivers. The goal is to bett…
Sponsor: CureDRPLA • Aim: Knowledge-focused
Last updated May 04, 2026 16:23 UTC