New global registry aims to unlock secrets of rare brain disease DRPLA
NCT ID NCT05489393
First seen Apr 05, 2026 · Last updated May 03, 2026 · Updated 4 times
Summary
This study is building a worldwide database of information from people with DRPLA, a rare genetic brain disorder. Researchers will collect details about symptoms, daily life, and disease impact through questionnaires filled out by patients or their caregivers. The goal is to better understand the disease and help connect patients with future research opportunities.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for DRPLA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
CureDRPLA
RECRUITINGNew York, New York, 11231, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
Explore the condition pages connected to this study.