New global registry aims to unlock secrets of rare brain disease DRPLA
NCT ID NCT05489393
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study creates a worldwide database for people with DRPLA, a rare genetic brain disorder. Participants or their caregivers fill out questionnaires about symptoms, daily life, and disease impact. The goal is to gather information to help researchers better understand DRPLA and connect patients with future clinical trials.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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CureDRPLA
RECRUITINGNew York, New York, 11231, United States