Massive HHT registry aims to unlock secrets of rare bleeding disorder
Knowledge-focused
Recruiting now
This study creates a large registry of people diagnosed with hereditary hemorrhagic telangiectasia (HHT), a condition causing abnormal blood vessels and bleeding. Researchers will collect medical records and annual health updates for up to 10 years to understand how the disease c…
Sponsor: Cure HHT • Aim: Knowledge-focused
Last updated Jul 19, 2026 00:00 UTC