TRISOMY 13 SYNDROME

Clinical trials for TRISOMY 13 SYNDROME explained in plain language.

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New study aims to support families of children with rare diseases

Knowledge-focused ENROLLING_BY_INVITATION

This study looks at the unmet palliative care needs of children with rare diseases and their family caregivers. Researchers will test a program called FACE-Rare to see if it helps families prepare for medical decisions and improves quality of life. About 480 families will take pa…

Matched conditions: TRISOMY 13 SYNDROME

Phase: NA • Sponsor: Children's National Research Institute • Aim: Knowledge-focused

Last updated May 17, 2026 04:36 UTC

TRISOMY 13 SYNDROME

Get alerted when new TRISOMY 13 SYNDROME trials appear

New study aims to support families of children with rare diseases