RARE DISORDERS

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Trials to join now! 1 Not yet recruiting 1

New app aims to give rare disease patients more control over their health data

Knowledge-focused Not yet recruiting

This study is testing a new digital tool designed to help rare disease patients and their families better understand and manage their consent for research. The app aims to make the process of agreeing to share health data and samples for studies clearer and easier to update. Rese…

Matched conditions: RARE DISORDERS

Sponsor: Istituto Ortopedico Rizzoli • Aim: Knowledge-focused

Last updated Feb 23, 2026 14:52 UTC

RARE DISORDERS

Get alerted when new RARE DISORDERS trials appear

New app aims to give rare disease patients more control over their health data