NEM5

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Trials to join now! 1

Global study tracks rare muscle disease to pave way for future treatments

Knowledge-focused Recruiting now

This study follows children and adults worldwide who have a rare genetic muscle disease called TNNT1 myopathy. Researchers aim to document how the disease progresses over time, including survival and motor milestones. The goal is to identify reliable measures that can be used in …

Matched conditions: NEM5

Sponsor: Clinic for Special Children • Aim: Knowledge-focused

Last updated Jun 27, 2026 14:01 UTC

NEM5

Get alerted when new NEM5 trials appear

Global study tracks rare muscle disease to pave way for future treatments