KLIPPEL TRENAUNAY SYNDROME
Clinical trials for KLIPPEL TRENAUNAY SYNDROME explained in plain language.
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First french registry launched to map mysterious overgrowth conditions
Knowledge-focused CompletedThis study created France's first national registry to better understand rare genetic overgrowth disorders. Researchers collected information from 28 patients with conditions like CLOVES and Klippel-Trenaunay syndromes to learn how common these disorders are and how they affect p…
Matched conditions: KLIPPEL TRENAUNAY SYNDROME
Sponsor: Institut National de la Santé Et de la Recherche Médicale, France • Aim: Knowledge-focused
Last updated Apr 01, 2026 14:42 UTC
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Tracking the future of a mysterious birthmark
Knowledge-focused CompletedThis study aimed to learn more about port wine stains, which are red birthmarks, when they appear on a child's leg. Researchers followed 150 children in France for five years to see how the birthmarks changed as the child grew and to check for any related health problems. The goa…
Matched conditions: KLIPPEL TRENAUNAY SYNDROME
Phase: NA • Sponsor: University Hospital, Tours • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:29 UTC