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Patients take the mic: global study asks what myositis research really matters

Knowledge-focused Recruiting now

This study aims to understand what research topics are most important to people living with rare inflammatory muscle diseases called myositis. Researchers will gather opinions from about 700 patients and caregivers worldwide through online surveys, stories, and group discussions.…

Matched conditions: IBM

Sponsor: Myositis International Health & Research Collaborative Alliance Foundation • Aim: Knowledge-focused

Last updated Mar 30, 2026 14:30 UTC

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Patients take the mic: global study asks what myositis research really matters