FTD

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Trials to join now! 4 Not yet finished but already full! 3 Completed 1

Voices of dementia: patients share their stories in groundbreaking phone study

Knowledge-focused Completed

This study aimed to understand what daily life is like for people living with or at high genetic risk for behavioral variant frontotemporal dementia (bvFTD). Researchers conducted phone interviews with 26 participants to learn about their emotional responses, challenges, and copi…

Matched conditions: FTD

Sponsor: University of Pennsylvania • Aim: Knowledge-focused

Last updated Mar 27, 2026 12:41 UTC

FTD

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Voices of dementia: patients share their stories in groundbreaking phone study