FTD

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Trials to join now! 5 Not yet finished but already full! 4 Completed 1

What’s it like to live with bvFTD? researchers ask patients directly

Knowledge-focused Completed

This study interviewed 26 adults who either have behavioral variant frontotemporal dementia (bvFTD) or carry a gene that puts them at risk. The goal was to learn how the condition affects daily life, emotions, and coping. No treatment or medication was tested—just listening and g…

Matched conditions: FTD

Sponsor: University of Pennsylvania • Aim: Knowledge-focused

Last updated Jun 27, 2026 08:10 UTC

FTD

Get alerted when new FTD trials appear

What’s it like to live with bvFTD? researchers ask patients directly