DEVELOPMENT, INFANT

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Trials to join now! 2 Not yet recruiting 2 Not yet finished but already full! 1 Completed 1

New study maps developmental milestones in babies with rare genetic conditions

Knowledge-focused Completed

This study followed 43 infants with rare genetic disorders to track their development from birth up to age 3, with medical records reviewed until age 18. Researchers used a standard developmental assessment tool to understand each child's unique needs. The goal was to gather info…

Matched conditions: DEVELOPMENT, INFANT

Sponsor: Boston Children's Hospital • Aim: Knowledge-focused

Last updated Jun 16, 2026 23:34 UTC

DEVELOPMENT, INFANT

Get alerted when new DEVELOPMENT, INFANT trials appear

New study maps developmental milestones in babies with rare genetic conditions