CRANIOSYNOSTOSIS

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Trials to join now! 2 Not yet finished but already full! 1 Completed 1

Study reveals family experiences with craniosynostosis diagnosis

Knowledge-focused Completed

This study looked at how families are told their child has craniosynostosis, a condition where skull bones fuse too early. Researchers interviewed and surveyed 574 parents and children to understand the emotional impact and improve the diagnosis process. The goal is to make the a…

Matched conditions: CRANIOSYNOSTOSIS

Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused

Last updated Jun 27, 2026 12:04 UTC

CRANIOSYNOSTOSIS

Get alerted when new CRANIOSYNOSTOSIS trials appear

Study reveals family experiences with craniosynostosis diagnosis