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COCKAYNE SYNDROME

Clinical trials for COCKAYNE SYNDROME explained in plain language.

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Trials to join now! 2 Not yet finished but already full! 1 Completed 2
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  • New study aims to support families of children with rare diseases

    Knowledge-focused ENROLLING_BY_INVITATION

    This study looks at the unmet palliative care needs of children with rare diseases and their family caregivers. Researchers will test a program called FACE-Rare to see if it helps families prepare for medical decisions and improves quality of life. About 480 families will take pa…

    Matched conditions: COCKAYNE SYNDROME

    Phase: NA • Sponsor: Children's National Research Institute • Aim: Knowledge-focused

    Last updated May 17, 2026 08:51 UTC

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