BARDET BIEDL SYNDROME
Clinical trials for BARDET BIEDL SYNDROME explained in plain language.
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Could a drug that targets the brain's hunger pathway help people with Bardet-Biedl syndrome?
Disease control Recruiting nowThis study looks at how well setmelanotide works in real-world settings for people with Bardet-Biedl syndrome, a rare genetic condition that causes severe obesity and constant hunger. Researchers will track changes in body mass index, cholesterol, liver fat, and quality of life i…
Matched conditions: BARDET BIEDL SYNDROME
Phase: PHASE4 • Sponsor: Tom Hühne • Aim: Disease control
Last updated Jul 01, 2026 00:00 UTC
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New registry aims to unlock secrets of rare Kidney-Liver diseases
Knowledge-focused Recruiting nowThis study is creating a central database and tissue bank for rare diseases affecting the kidneys and liver, such as ARPKD and Joubert syndrome. Researchers will collect medical information, genetic samples, and tissues from 200 participants to help doctors and scientists better …
Matched conditions: BARDET BIEDL SYNDROME
Sponsor: Children's Hospital of Philadelphia • Aim: Knowledge-focused
Last updated Jun 27, 2026 14:00 UTC
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Thousands join fight against blindness by sharing their stories
Knowledge-focused Recruiting nowThis registry collects information from people with inherited retinal diseases, like retinitis pigmentosa and Stargardt disease. Participants share their symptoms, family history, and genetic test results online. The goal is to help researchers understand these rare diseases and …
Matched conditions: BARDET BIEDL SYNDROME
Sponsor: Foundation Fighting Blindness • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:36 UTC