ALBINISM
Clinical trials for ALBINISM explained in plain language.
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Massive eye gene bank seeks 1,000 volunteers to unlock secrets of rare blindness
Knowledge-focused Recruiting nowThis study aims to expand a large repository of DNA samples and eye health information from people with rare inherited eye diseases, such as aniridia, Best disease, and albinism. Researchers will collect saliva or blood samples and eye exam data from up to 1,000 participants of a…
Matched conditions: ALBINISM
Sponsor: National Eye Institute (NEI) • Aim: Knowledge-focused
Last updated May 12, 2026 13:39 UTC
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New study to measure hidden toll of rare skin diseases on patients and families
Knowledge-focused Recruiting nowThis study aims to understand how 9 rare skin diseases affect people's lives beyond just physical symptoms. Researchers will survey 900 patients and their families to measure the emotional, social, and financial burden. The goal is to create a tool that helps doctors and caregive…
Matched conditions: ALBINISM
Sponsor: Institut National de la Santé Et de la Recherche Médicale, France • Aim: Knowledge-focused
Last updated May 04, 2026 16:30 UTC