ALAGILLE SYNDROME (ALGS)
Clinical trials for ALAGILLE SYNDROME (ALGS) explained in plain language.
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New registry tracks kids with rare liver conditions to improve care
Knowledge-focused Recruiting nowThis study builds a national registry for children under 18 with Alagille syndrome or genetic intrahepatic cholestasis. Researchers will collect health data over many years to understand how these rare liver diseases progress and how treatments work in real life. The goal is to i…
Matched conditions: ALAGILLE SYNDROME (ALGS)
Sponsor: Children's Hospital of Eastern Ontario • Aim: Knowledge-focused
Last updated May 17, 2026 04:44 UTC
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New study tracks liver risks of livmarli in kids with rare bile duct diseases
Knowledge-focused Recruiting nowThis study looks at how often liver problems happen in children with Alagille syndrome or progressive familial intrahepatic cholestasis who take the drug Livmarli. Researchers will use a Japanese registry of childhood liver disease to track about 50 patients. The goal is to bette…
Matched conditions: ALAGILLE SYNDROME (ALGS)
Sponsor: Takeda • Aim: Knowledge-focused
Last updated May 13, 2026 16:03 UTC