Telangiectasia, hereditary hemorrhagic, type 1
MONDO:0008535Also known as: HHT1, hereditary hemorrhagic telangiectasia type 1, telangiectasia, hereditary hemorrhagic, of Rendu, Osler, and Weber, telangiectasia, hereditary hemorrhagic, type 1, ENG-related Hereditary hemorrhagic telangiectasia, HHT, ORW disease, Osler Weber Rendu syndrome type 1
9 clinical trials for this condition and its sub-types, 4 tagged with Telangiectasia, hereditary hemorrhagic, type 1 itself.
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Can a cancer drug calm the nosebleeds of a rare bleeding disorder?
Symptom relief Recruiting nowHereditary hemorrhagic telangiectasia (HHT) causes tangled blood vessels that lead to frequent, hard-to-stop nosebleeds and low hemoglobin. Researchers are testing whether intravenous bevacizumab, given once or twice a year after nasal electrocoagulation, reduces nosebleed severi…
Phase 2 • Sponsor: Second Affiliated Hospital, Zhejiang University, School of Medicine • Aim: Symptom relief
Last updated Sep 20, 2026 00:00 UTC
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New registry aims to unlock secrets of rare diseases
Knowledge-focused Recruiting nowThis study is creating a large database to collect information on people with rare diseases like amyloidosis, sarcoidosis, and Gaucher disease. Researchers will track patients' health over time, including their symptoms, treatments, and outcomes. The goal is to improve diagnosis …
Sponsor: Hospital Italiano de Buenos Aires • Aim: Knowledge-focused
Last updated Jun 27, 2026 08:11 UTC