Susac syndrome

MONDO:0019390

Susac syndrome (SS) is a rare disorder characterized by the triad of central nervous system (CNS) dysfunction, branch retinal artery occlusions (BRAOs) and sensorineural hearing loss (SNHL). It is presumably due to autoimmune-mediated occlusions of microvessels in the CNS, the retina, and the inner ear.

Also known as: RED-M, Retinocochleocerebral vasculopathy, SICRET syndrome, retinopathy-encephalopathy-deafness associated with microangiopathy, small infarctions of cochlear, retinal and encephalic tissue, SICRET (small infarction of cochlear, retinal, and encephalic tissue) syndrome

37 clinical trials for this condition and its sub-types, 2 tagged with Susac syndrome itself.

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Where it sits in the disease tree

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Part of

↑ Syndromic disease (7133) ↑ Autoimmune disease (4033)

Including sub-types (37) Tagged with Susac syndrome (2)

Trials to join now! 14 Not yet recruiting 9 Not yet finished but already full! 5 Completed 8 Terminated 1

Biopsy tolerance study ends early – what we know

Knowledge-focused Stopped early

This study aimed to understand how well patients tolerate biopsies for autoimmune diseases and whether they feel properly informed. It planned to enroll 505 people but was terminated early. The results may help improve patient experience with these common procedures.

Sponsor: University Hospital, Brest • Aim: Knowledge-focused

Last updated Jun 28, 2026 00:00 UTC

Susac syndrome

Where it sits in the disease tree

Biopsy tolerance study ends early – what we know