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Hereditary persistence of fetal hemoglobin-beta-thalassemia syndrome

MONDO:0018749

Hereditary persistence of fetal hemoglobin (HPFH) associated with beta-thalassemia is characterized by high hemoglobin (Hb) F levels and an increased number of fetal-Hb-containing-cells.

Also known as: HPFH-beta-thalassemia syndrome

51 clinical trials for this condition and its sub-types.

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Broader categories

Disease (618) Anemia (203) Hereditary disease (172) Hematologic disorder (160) Inherited hemoglobinopathy (33) Hemoglobinopathy (30) Human disease (14) Erythrocyte disorder (6) Disease of genetic or genomic mechanism (2) Beta-thalassemia and related diseases (0)

Trials to join now! 24 Not yet recruiting 3 Not yet finished but already full! 6 Completed 17 Terminated 1

Can extra care after transplant help older patients live better?

Disease control Terminated

This study tested two extra care programs—supportive palliative care and clinical management of other health issues—for older or frail patients who had a donor stem cell transplant. The goal was to see if these programs could improve quality of life and survival compared to stand…

Phase: PHASE2, PHASE3 • Sponsor: Fred Hutchinson Cancer Center • Aim: Disease control

Last updated Jun 27, 2026 08:10 UTC