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Glycogen storage disease IXb

MONDO:0009868

A disorder of glycogen metabolism caused by a deficiency in liver and muscle phosphorylase kinase subunit b, is autosomal recessive and can lead to hepatomegaly, hypoglycemia after prolonged fasting, and growth retardation.

Also known as: GSD IXb, GSD due to liver and muscle phosphorylase kinase deficiency, GSD type 9B, GSD type IXb, GSD9B, PHKB glycogen storage disease, PHKB-related glycogen storage disease type IX, glycogen storage disease 9B

3 clinical trials for this condition and its sub-types.

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Broader categories

Disease (680) Metabolic disease (233) Hereditary disease (176) Inborn errors of metabolism (45) Disorder of glycogen metabolism (14) Human disease (14) Carbohydrate metabolism disease (3) Disease of genetic or genomic mechanism (2) Glycogen storage disease IX (2) Inborn carbohydrate metabolic disorder (2)
Trials to join now! 2 Not yet finished but already full! 1
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  • Newborn screening study aims to catch rare diseases at birth

    Diagnosis Ongoing

    This study offers voluntary screening for newborns in North Carolina to detect a wide range of rare health conditions early. Using a small blood sample already collected at birth, the program tests for dozens of disorders, including spinal muscular atrophy, cystic fibrosis, and m…

    Sponsor: RTI International • Aim: Diagnosis

    Last updated Jul 03, 2026 00:00 UTC

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