Rare cancer patients get a voice: new study tracks Real-World treatment outcomes
NCT ID NCT04814095
First seen Nov 01, 2025 · Last updated Jun 16, 2026 · Updated 30 times
Summary
This study follows 30 adults with rare cancers or rare genetic changes who are already taking a targeted therapy approved by Health Canada but not yet covered by public funding. Researchers will track how long patients live, their quality of life, and how well the treatment works in everyday settings. The goal is to gather real-world evidence to help decision-makers fund these treatments for more patients.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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BC Cancer
RECRUITINGVancouver, British Columbia, V5Z4E6, Canada
Contact Phone: •••-•••-••••
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.