New study tracks eye disease in rare genetic disorder
NCT ID NCT06190626
First seen Nov 01, 2025 · Last updated May 21, 2026 · Updated 31 times
Summary
This study follows 30 people with Zellweger Spectrum Disorder over 5 years to learn how their vision changes. Participants will have yearly eye tests, physical exams, and blood work. The goal is to better understand the disease and find the best ways to monitor vision loss.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Eye Institute of Alberta
RECRUITINGEdmonton, Alberta, T5H 3V9, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Research Institute-McGill University Health Center
RECRUITINGMontreal, Quebec, H4A 3J1, Canada
Contact Email: •••••@•••••
Contact
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University of Rochester Medical Center/Flaum Eye Institute
RECRUITINGRochester, New York, 14642, United States
Contact
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.