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Reunion study explores why parents choose life after down syndrome diagnosis

NCT ID NCT04811534

Knowledge-focused Sponsor: Centre Hospitalier Universitaire de la Réunion Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study interviewed 28 parents in Reunion Island who had a child with Down Syndrome to understand why they chose not to terminate the pregnancy. Researchers wanted to learn about the beliefs, values, and cultural or economic factors behind this decision. The goal is to shed light on local attitudes and improve support for families facing similar choices.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

28 people

The number who actually took part.

Started

Feb 2022

Finished

Apr 2024

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Parents of a child born with Down Syndrome as of January 2019 living on the Reunion Island

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: Parents: * of a child born alive with Down Syndrome as of January 1, 2019 and registered within REMACOR * living on the island of Reunion at the time of birth * having a good understanding of French and/or Creole * having given their written consent to the study Exclusion Criteria: Parents: * with normal/negative prenatal screening (False positive) * minors at the time of inclusion * under guardianship or legal protection * with a pathology preventing the interviews from taking place

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Conditions

The condition(s) this trial relates to.

Down syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Down syndrome

Contacts and locations

Locations

  • CHU de la Réunion

    Saint-Denis, 97400, Reunion

  • CHU de la Réunion

    Saint-Pierre, 97448, Reunion

More trials for these conditions

Other studies related to the condition(s) this trial covers.