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Rare hand deformity study seeks answers from past records

NCT ID NCT07404514

First seen Feb 11, 2026 · Last updated May 24, 2026 · Updated 16 times

Summary

This study looks at existing medical records and asks parents to fill out questionnaires to better understand a rare hand condition called ulnar longitudinal deficiency. The goal is to learn how the condition changes over time and what factors guide decisions about surgery. No new tests or visits are required for participants. The findings will help doctors create better, more consistent care plans for children with this condition.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Hôpitaux Paris Est Val-de-Marne - Centre de Référence des Malformations des Membres

    Saint-Maurice, 94410, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.