Heart family help tool tested – but study pulled
NCT ID NCT05926661
First seen Jun 26, 2026 · Last updated Jun 26, 2026
Summary
This study aimed to test a support toolkit for families of children with congenital heart disease. The toolkit included an iPad with a hospital app, educational materials, and help with transportation and childcare. Only 5 families were planned to participate, but the study was withdrawn before enrolling anyone. No results are available.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- Active substance
- NCC Support Toolkit (educational materials, app, video calls, transportation assistance)
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Phase
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Not a phased trial
Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.
- Started
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Nov 2023
- Finished
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Apr 2024
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
- Ages
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18 years and older
- Sex
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Anyone
- Healthy volunteers
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Accepted
You do not need to have the condition being studied to take part.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Parent/Caregiver Group- Inclusion Criteria: • Parents of a child with congenital heart disease and planned discharge from the Nemours Cardiac Center. Exclusion Criteria: • Non-English and Non-Spanish speaking families. The Healthcare providers group is pre-identified and they will be invited to provide feedback through semi-structured qualitative interviews only. They will not receive any intervention. Their participation will be voluntary.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Nemours Children's Hospital
Wilmington, Delaware, 19803, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.