600 kids with spinal muscular atrophy to be tracked in landmark chinese study
NCT ID NCT05042921
First seen Sep 30, 2025 · Last updated May 23, 2026 · Updated 30 times
Summary
This study is a nationwide registry in China that follows 600 children with spinal muscular atrophy (SMA). The goal is to understand how the disease progresses naturally and how well current treatments work in everyday life. Researchers will collect information from both past medical records and ongoing check-ups. No new treatments are tested; instead, this study helps doctors learn more about SMA in Chinese children.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Anhui Children's Hospital
Hefei, Anhui, 230006, China
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Beijing Children's Hospital, Capital Medical University
Beijing, Beijing Municipality, 100045, China
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Children's Hospital Affiliated to Shandong University
Jinan, Jinan Shandong, 250022, China
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Children's Hospital of Chongqing Medical University
Chongqing, Chongqing Municipality, 400014, China
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Children's Hospital of Fudan University
Shanghai, Shanghai Municipality, 201102, China
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Dalian Women and Children's Medical Group
Dalian, Liaoning, 116037, China
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Fujian Medical University Union Hospital
Fuzhou, Fujian, 350001, China
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Hunan Children's Hospital
Changsha, Hu'nan, 410007, China
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Jiangxi Provincial Children's Hospital
Nanchang, Jiangxi, 330006, China
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Maternity and Child Health Care of Guangxi Zhuang Autonomous Region
Nanning, Guangxi Zhuang, 530002, China
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People's Hospital of Ningxia Hui Autonomous Region
Yinchuan, Ningxia Hui, 750002, China
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Shengjing Hospital of China Medical University
Shenyang, Liaoning, 110022, China
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Shenzhen Children's Hospital
Shenzhen, Guangdong, 518026, China
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The Affiliated Hospital of Inner Mongolia Medical University
Hohhot, Inner Mongolia, 010050, China
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The Children's Hospital, Zhejiang University School of Medicine
Hangzhou, Zhejiang, 310052, China
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The First Affiliated Hospital, Sun Yat-sen University
Guangzhou, Guangdong, 510080, China
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The First Hospital of Jilin University
Changchun, Jilin, 130021, China
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The Second Affiliated Hospital of Xi'An Jiaotong University
Xi’an, Shanxi, 710004, China
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The Second Hospital of Hebei Medical University
Shijiazhuang, Hebei, 050000, China
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The Third Affiliated Hospital of Zhengzhou University
Zhengzhou, Henan, 450052, China
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West China Second University Hospital, Sichuan University
Chengdu, Sichuan, 610041, China
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Wuhan Children's Hospital, Tongji Medical College Huazhong University of Science & Technology
Wuhan, Hubei, 430010, China
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Xiamen Maternal and Child Health Hospital
Xiamen, Fujian, 361003, China
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Xiangya Hospital, Central South University
Changsha, Hu'nan, 410008, China
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Xuzhou Central Hospital
Xuzhou, Jiangsu, 221009, China
Conditions
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