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30-Year data dive aims to unlock secrets of rare blood cancer

NCT ID NCT05093153

Knowledge-focused Sponsor: Fundación Española de Hematología y Hemoterapía Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is creating a national registry of 1,000 people in Spain diagnosed with Waldenström macroglobulinemia or a related condition (IgM-MGUS) over the past 30 years. Researchers will review medical records to understand patient characteristics, treatments, and long-term outcomes. The goal is to identify patterns that could improve future care and guide new clinical trials.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this registry could help doctors better understand Waldenström macroglobulinemia and improve future treatment guidelines.
What could go wrong
This is an observational study, not a treatment trial. It collects past data, so it cannot test new therapies or directly benefit participants.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Oct 2021

Expected to finish

Mar 2030

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Patients diagnosed with Waldenström's Macroglobulinemia and Monoclonal Gammopathy of uncertain significance

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Age ≥18 years * Patients having a confirmed diagnosis of either in the las 30 years: * Monoclonal Gammopathy of uncertain significance -IgM * Asymptomatic Waldenström's macroglobulinemia * Symptomatic Waldenström's macroglobulinemia Exclusion Criteria: * Other subtypes of Lymphoproliferative diseases.

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Get notified about this study

Sign up to get updates when this study changes or when new studies for Monoclonal gammopathy of undetermined significance, IgM are added.

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Conditions

The condition(s) this trial relates to.

monoclonal gammopathy of uncertain significance Waldenstrom macroglobulinemia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Waldenstrom macroglobulinemia

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    51 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • CAU de León

    RECRUITING

    León, León, Spain

  • CAU de Salamanca

    RECRUITING

    Salamanca, Salamanca, Spain

  • CUN Navarra

    RECRUITING

    Pamplona, Navarre, Spain

  • Complejo Hospitalario Universitario de La Coruña (CHUAC)

    RECRUITING

    A Coruña, La Coruña, Spain

  • Hospital Central de La Defensa Gómez Ulla

    RECRUITING

    Madrid, Madrid, 28040, Spain

  • Hospital Clinico Universitario Santiago de Compostela

    RECRUITING

    Madrid, Madrid, 28040, Spain

  • Hospital Clinico Universitario Virgen de la Arrixaca

    RECRUITING

    El Palmar, Murcia, Spain

  • Hospital Clínic de Barcelona

    RECRUITING

    Barcelona, Barcelona, Spain

  • Hospital Clínico Universitario Lozano Blesa

    RECRUITING

    Zaragoza, Zaragoza, Spain

  • Hospital Clínico de Valencia

    RECRUITING

    Valencia, Valencia, Spain

  • Hospital Costa del Sol

    RECRUITING

    Marbella, Málaga, Spain

  • Hospital Insular Materno Infantil- Gran Canaria

    RECRUITING

    Las Palmas de Gran Canaria, Las Palmas, 35016, Spain

  • Hospital Juan Ramón Jiménez

    RECRUITING

    Huelva, Huelva, 21005, Spain

  • Hospital La Fe de Valencia

    RECRUITING

    Valencia, Valencia, Spain

  • Hospital Marques de Valdecilla

    RECRUITING

    Madrid, Madrid, 28040, Spain

  • Hospital Miguel Servet

    RECRUITING

    Zaragoza, Zaragoza, Spain

  • Hospital Mutua Terrassa

    RECRUITING

    Barcelona, Barcelona, 08221, Spain

  • Hospital Parc Taulí

    RECRUITING

    Sabadell, Barcelona, Spain

  • Hospital Regional Universitario de Málaga

    RECRUITING

    Málaga, Málaga, Spain

  • Hospital Rey Juan Carlos

    RECRUITING

    Madrid, Madrid, 28040, Spain

  • Hospital San Pedro

    RECRUITING

    Logroño, La Rioja, 26006, Spain

  • Hospital Sant Joan de Déu de Manresa

    RECRUITING

    Manresa, Barcelona, Spain

  • Hospital Santa Lucía de Cartagena

    RECRUITING

    Cartagena, Murcia, 28040, Spain

  • Hospital Son Llatzer

    RECRUITING

    Palma, Balearic Islands, Spain

  • Hospital Universitario 12 de Octubre

    RECRUITING

    Madrid, Madrid, 28041, Spain

  • Hospital Universitario Arnau de Vilanova

    RECRUITING

    Lleida, Lleida, Spain

  • Hospital Universitario Clínico San Cecilio

    RECRUITING

    Granada, Granada, Spain

  • Hospital Universitario Doctor Peset

    RECRUITING

    Valencia, Valencia, Spain

  • Hospital Universitario Fundación Jimenez Diaz

    RECRUITING

    Madrid, Madrid, Spain

  • Hospital Universitario Gregorio Marañón

    RECRUITING

    Madrid, Madrid, 28007, Spain

  • Hospital Universitario Infanta Leonor

    RECRUITING

    Madrid, Madrid, 28031, Spain

  • Hospital Universitario Nuestra Señora de Candelaria

    RECRUITING

    Santa Cruz de Tenerife, Santa Cruz de Tenerife, Spain

  • Hospital Universitario Puerta de Hierro

    RECRUITING

    Madrid, Madrid, Spain

  • Hospital Universitario Ramón y Cajal

    RECRUITING

    Madrid, Madrid, Spain

  • Hospital Universitario Reina Sofía

    RECRUITING

    Córdoba, Córdoba, Spain

  • Hospital Universitario Son Espases

    RECRUITING

    Palma de Mallorca, Balearic Islands, Spain

  • Hospital Universitario Virgen de la Victoria

    RECRUITING

    Málaga, Málaga, Spain

  • Hospital Universitario de Gran Canaria Dr. Negrín

    RECRUITING

    Las Palmas de Gran Canaria, Las Palmas, 35010, Spain

  • Hospital Vall d'Hebron

    RECRUITING

    Barcelona, Barcelona, Spain

  • Hospital Virgen de Valme

    RECRUITING

    Seville, Sevilla, 41014, Spain

  • Hospital Virgen de la Macarena

    RECRUITING

    Seville, Sevilla, 41009, Spain

  • Hospital Virgen de las Nieves

    RECRUITING

    Granada, Granada, 18014, Spain

  • Hospital Vital Álvarez-Buylla

    RECRUITING

    Mieres, Principality of Asturias, Spain

  • Hospital de Galdakao

    RECRUITING

    Galdakao, Vizcaya, 48960, Spain

  • Hospital de Laredo

    RECRUITING

    Madrid, Madrid, 28040, Spain

  • Hospital de Mérida

    RECRUITING

    Mérida, Badajoz, 06800, Spain

  • Hospital de San Juan Despí Moisès Broggi

    RECRUITING

    Barcelona, Barcelona, 08970, Spain

  • Hospital de la Serranía de Ronda

    RECRUITING

    Málaga, Málaga, 29400, Spain

  • Hospital del Bierzo

    RECRUITING

    Ponferrada, León, 24404, Spain

  • Hospital del Mar

    RECRUITING

    Barcelona, Barcelona, Spain

  • ICO Badalona - Hospital Germans Trias i Pujol

    RECRUITING

    Badalona, Barcelona, Spain

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