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Race to stop SMA before it starts: new drug tested in babies

NCT ID NCT07221669

Summary

This study is testing a drug called salanersen (BIIB115) in babies who have the genetic cause of spinal muscular atrophy (SMA) but have not yet shown any symptoms. The goal is to see if starting treatment very early can prevent or lessen the muscle weakness and movement problems caused by SMA. All participants will receive the drug via injection into the spinal fluid over several years, and researchers will track their ability to reach key movement milestones like sitting and walking.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Childrens Hospital of the Kings Daughter Norfolk

    RECRUITING

    Norfolk, Virginia, 23507, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact Email: •••••@•••••

  • Neurology Rare Disease Center

    RECRUITING

    Flower Mound, Texas, 75028, United States

    Contact Phone: •••-•••-••••

    Contact

Conditions

Explore the condition pages connected to this study.