New toolkit aims to end sickle cell trait disclosure gap
NCT ID NCT05387564
First seen Jan 08, 2026 · Last updated Jun 23, 2026 · Updated 31 times
Summary
This study tested a toolkit to help pediatric doctors document and discuss sickle cell trait results found during routine newborn screening. Researchers worked with 114 healthcare providers to see if the toolkit made it easier to share this information with families. The goal is to close a known gap where many people never learn their sickle cell trait status, despite being screened at birth.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Nemours Children's Hospital, Delware
Wilmington, Delaware, 19803, United States
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
SCT Documentation and Disclosure Toolkit (behavioral intervention)
What this could lead to
If successful, this toolkit could help more families learn their child's sickle cell trait status early, enabling informed health decisions.
What could go wrong
This is a small, completed implementation study focused on provider behavior, not a treatment trial. Results may not apply to all clinics or guarantee long-term disclosure.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.