New tool helps teens with sickle cell disease take charge of their treatment
NCT ID NCT05383911
First seen Nov 21, 2025 · Last updated May 23, 2026 · Updated 23 times
Summary
This study tests a program that helps teens and young adults (ages 15-25) with sickle cell disease work with their doctors to choose the best treatment. About 68 patients, their families, and doctors will try a shared decision-making toolkit that includes virtual reality or standard education materials. The goal is to see if the program is easy to use and helps patients feel more involved in their care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Nemours Children's Hospital, Delaware
RECRUITINGWilmington, Delaware, 19803, United States
Conditions
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