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Gene therapy watch: researchers track Long-Term safety of RGX-111 in MPS i patients

NCT ID NCT06103487

ENROLLING_BY_INVITATION Disease control Sponsor: REGENXBIO Inc. Source: ClinicalTrials.gov ↗

First seen May 04, 2026 · Last updated May 20, 2026 · Updated 2 times

Summary

This study follows 21 people with MPS I who previously received RGX-111 gene therapy in an earlier trial. Researchers will monitor side effects and measure changes in thinking and behavior over time to see if the treatment remains safe and continues to help.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Children's Hospital of Orange County

    Orange, California, 92868, United States

  • Hospital de Clinicas de Porto Alegre

    Porto Alegre, Rio Grande do Sul, 90035-903, Brazil

Conditions

Explore the condition pages connected to this study.