Hemophilia b drug refixia® under Routine-Use watch in japan
NCT ID NCT03875547
First seen Oct 31, 2025 · Last updated Apr 29, 2026 · Updated 29 times
Summary
This study looked at the safety and effectiveness of Refixia® in 28 people with Hemophilia B in Japan. Participants received the drug as part of their normal care. Researchers tracked side effects, bleeding episodes, and quality of life. The goal was to confirm the drug works well in everyday use, not to cure the disease.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Aomori Prefectural Central Hospital_Pediatrics
Aomori, 030-8553, Japan
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Chiba University Hospital_Diabetes, Metabolism and Endocrinology
Chiba-shi, Chiba, 260-8677, Japan
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Gunma University Hospital_Hematology
Maebashi-shi, Gunma, 371-8511, Japan
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Hospital of the University of Occupational And Environmental Health Japan_Pediatrics
Kitakyusyu-shi, Fukuoka, 807 8555, Japan
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Hyogo prefectural kobe children's hospital Dept. of Haem and Onclogy
Hyōgo, 654-0047, Japan
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Ishikawa Prefectural Central Hospital_Haematology
Ishikawa, 920-8530, Japan
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Ishiyama Clinic
Yamagata, 992-0035, Japan
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Japan Red Cross Narita Hospital_Hematology and Oncology
Chiba, 286-8523, Japan
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Kitasato University Hospital_Blood Transfusion
Kanagawa, 252-0375, Japan
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Matsudo City General Hospital_Pediatrics
Chiba, 270-2296, Japan
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Nagoya University Hospital_Blood Transfusion
Aichi, 466-8560, Japan
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Naha City Hospital_Cardiovascular Medicine
Naha-shi, Okinawa, 902-8511, Japan
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Nara Medical University Hospital_Pediatrics
Nara, 634-8522, Japan
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Novo Nordisk Investigational Site
Søborg, Denmark
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Ogikubo Hospital_Blood Coagulation
Tokyo, 167-0035, Japan
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Saitama Children's Med Centre_Hematology-Oncology
Saitama, 330-8777, Japan
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St. Marianna Univ., Yokohama City Seibu HP, Pediatrics Dept,
Yokohama-shi, Kanagawa, 241-0811, Japan
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St. Marianna University School of Medicine Hospital_Pediatrics
Kanagawa, 216-8511, Japan
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The Hospital of Hyogo College of Medicine_Haematology
Nishinomiya-shi, Hyogo, 663 8051, Japan
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Tokushima Red Cross Hospital_Pediatrics
Tokushima, 773-8502, Japan
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Tokushima University Hospital_Pediatrics
Tokushima, 770-8503, Japan
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Tokyo Medical Univ. Hospital_Laboratory Medicine
Tokyo, 160-0023, Japan
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Tokyo Medical University Ibaraki Medical Center_Ibaraki
Ibaraki, 300-0395, Japan
Conditions
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