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Japanese hemophilia b patients monitored on refixia – no surprises found

NCT ID NCT03875547

Completed Disease control Sponsor: Novo Nordisk A/S Source: ClinicalTrials.gov ↗

First seen Oct 31, 2025 · Last updated Jun 17, 2026 · Updated 40 times

Summary

This study followed 28 people with hemophilia B in Japan who were already prescribed Refixia as part of their normal care. Researchers tracked side effects, bleeding episodes, and quality of life to confirm the drug's safety and effectiveness over time. The study did not test a new treatment or aim for a cure, but rather checked how well the medicine works in everyday use.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Aomori Prefectural Central Hospital_Pediatrics

    Aomori, 030-8553, Japan

  • Chiba University Hospital_Diabetes, Metabolism and Endocrinology

    Chiba-shi, Chiba, 260-8677, Japan

  • Gunma University Hospital_Hematology

    Maebashi-shi, Gunma, 371-8511, Japan

  • Hospital of the University of Occupational And Environmental Health Japan_Pediatrics

    Kitakyusyu-shi, Fukuoka, 807 8555, Japan

  • Hyogo prefectural kobe children's hospital Dept. of Haem and Onclogy

    Hyōgo, 654-0047, Japan

  • Ishikawa Prefectural Central Hospital_Haematology

    Ishikawa, 920-8530, Japan

  • Ishiyama Clinic

    Yamagata, 992-0035, Japan

  • Japan Red Cross Narita Hospital_Hematology and Oncology

    Chiba, 286-8523, Japan

  • Kitasato University Hospital_Blood Transfusion

    Kanagawa, 252-0375, Japan

  • Matsudo City General Hospital_Pediatrics

    Chiba, 270-2296, Japan

  • Nagoya University Hospital_Blood Transfusion

    Aichi, 466-8560, Japan

  • Naha City Hospital_Cardiovascular Medicine

    Naha-shi, Okinawa, 902-8511, Japan

  • Nara Medical University Hospital_Pediatrics

    Nara, 634-8522, Japan

  • Novo Nordisk Investigational Site

    Søborg, Denmark

  • Ogikubo Hospital_Blood Coagulation

    Tokyo, 167-0035, Japan

  • Saitama Children's Med Centre_Hematology-Oncology

    Saitama, 330-8777, Japan

  • St. Marianna Univ., Yokohama City Seibu HP, Pediatrics Dept,

    Yokohama-shi, Kanagawa, 241-0811, Japan

  • St. Marianna University School of Medicine Hospital_Pediatrics

    Kanagawa, 216-8511, Japan

  • The Hospital of Hyogo College of Medicine_Haematology

    Nishinomiya-shi, Hyogo, 663 8051, Japan

  • Tokushima Red Cross Hospital_Pediatrics

    Tokushima, 773-8502, Japan

  • Tokushima University Hospital_Pediatrics

    Tokushima, 770-8503, Japan

  • Tokyo Medical Univ. Hospital_Laboratory Medicine

    Tokyo, 160-0023, Japan

  • Tokyo Medical University Ibaraki Medical Center_Ibaraki

    Ibaraki, 300-0395, Japan

Conditions

The condition(s) this trial relates to.

hemophilia B

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

HAEMOPHILIA B