Two-Year look at hemophilia b treatment in everyday life

NCT ID NCT03901755

Completed Disease control Sponsor: Swedish Orphan Biovitrum Source: ClinicalTrials.gov ↗

Summary

This study observed how patients with hemophilia B used the extended-release clotting factor Alprolix in real-world settings over two years. Researchers tracked bleeding rates, injection frequency, and medication usage in 151 patients who were already prescribed this treatment. The goal was to understand how well the treatment works outside of controlled clinical trials.

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Contacts and locations

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Locations

Swedish Orphan Biovitrum Research Site

Brno, Czechia
Swedish Orphan Biovitrum Research Site

Prague, Czechia
Swedish Orphan Biovitrum Research Site

Dublin, Ireland
Swedish Orphan Biovitrum Research Site

Bari, Italy
Swedish Orphan Biovitrum Research Site

Florence, Italy
Swedish Orphan Biovitrum Research Site

Genova, Italy
Swedish Orphan Biovitrum Research Site

Milan, Italy
Swedish Orphan Biovitrum Research Site

Roma, Italy
Swedish Orphan Biovitrum Research Site

Turin, Italy
Swedish Orphan Biovitrum Research Site

Oslo, Norway
Swedish Orphan Biovitrum Research Site

Murcia, Spain
Swedish Orphan Biovitrum Research Site

Vigo, Spain
Swedish Orphan Biovitrum Research Site

Gothenburg, Sweden
Swedish Orphan Biovitrum Research Site

Malmo, Sweden
Swedish Orphan Biovitrum Research Site

Hull, United Kingdom
Swedish Orphan Biovitrum Research Site

London, NW3 2QG, United Kingdom
Swedish Orphan Biovitrum Research Site

London, SE1 7EH, United Kingdom
Swedish Orphan Biovitrum Research Site

London, W12 0HS, United Kingdom
Swedish Orphan Biovitrum Research Site

London, WC1N 3JH, United Kingdom
Swedish Orphan Biovitrum Research Site

Manchester, United Kingdom
Swedish Orphan Biovitrum Research Site

Oxford, United Kingdom
Swedish Orphan Biovitrum Research Site (Haemophilia Center Aghia Sophia Children's Hospital)

Athens, Greece
Swedish Orphan Biovitrum Research Site (Hospital Sant Joan de Deu)

Barcelona, Spain
Swedish Orphan Biovitrum Research Site (Hospital de Vall d'Hebrón)

Barcelona, Spain
Swedish Orphan Biovitrum Research Site (Karolinska University Hospital adult)

Stockholm, Sweden
Swedish Orphan Biovitrum Research Site (Karolinska University Hospital pediatric)

Stockholm, Sweden
Swedish Orphan Biovitrum Research Site (King Faisal Hospital adult)

Riyadh, Saudi Arabia
Swedish Orphan Biovitrum Research Site (King Faisal Hospital pediatric)

Riyadh, Saudi Arabia
Swedish Orphan Biovitrum Research Site (Laikο General Hospital of Athens)

Athens, Greece

Conditions

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HEMOPHILIA B