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New hope for rare blood disorder: ravulizumab trial shows promise in china

NCT ID NCT06578949

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This completed Phase 3 trial tested ravulizumab in 18 adults in China with paroxysmal nocturnal hemoglobinuria (PNH), a rare blood disorder that destroys red blood cells. The study measured changes in LDH, a marker of red blood cell breakdown, to see if the drug could control the disease. All participants had not previously received complement inhibitor treatment.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
ravulizumab
What this could lead to
If successful, ravulizumab could offer a new treatment option for people with PNH in China, helping control red blood cell destruction and reduce symptoms.
What could go wrong
This is a small, single-arm study with only 18 participants, so results may not apply broadly. Ravulizumab requires lifelong treatment and carries infection risks, including meningococcal infection.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Phase 3

Large-scale testing in a bigger group. Usually the last step before a treatment can be approved.

Participants

18 people

The number who actually took part.

Started

Oct 2024

Finished

Dec 2025

Lead sponsor

A company

The lead sponsor is a pharmaceutical, biotech, or medical-device company.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Adult C5 inhibitor naive PNH patients (age\>=18), which is confirmed by flow cytometry evaluation. * Must be vaccinated againast N meningitidis. Exclusion Criteria * Meningitidis infection or unresolved meningococcal disease * History of bone marrow transplantation * Other significant systemic diseases that might have impact on efficacy and safety assessment

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Conditions

The condition(s) this trial relates to.

Hemoglobinuria, Paroxysmal paroxysmal nocturnal hemoglobinuria

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Research Site

    Beijing, CN-100730, China

  • Research Site

    Guangzhou, 510100, China

  • Research Site

    Hangzhou, 310003, China

  • Research Site

    Nantong, 226001, China

  • Research Site

    Shanghai, 200040, China

  • Research Site

    Tianjin, 300020, China

  • Research Site

    Tianjin, 300050, China

  • Research Site

    Wuhan, 430022, China

More trials for these conditions

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