Large study digs into rare brain tumors to uncover hidden risks
NCT ID NCT03251989
First seen Nov 01, 2025 · Last updated Jun 22, 2026 · Updated 31 times
Summary
This completed study enrolled 326 adults with rare central nervous system tumors, such as medulloblastoma and ependymoma. Participants completed surveys about their health, symptoms, and exposures, and provided a saliva sample for genetic analysis. The goal was to better understand what factors are linked to these rare tumors, which could help guide future research into screening or treatments.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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National Cancer Institute (NCI)/ Neuro-Oncology Branch
Bethesda, Maryland, 20892, United States
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could help identify genetic or environmental risk factors for rare CNS tumors, potentially pointing toward future screening or treatment targets.
What could go wrong
This is an observational study that only collects self-reported data and saliva samples. It does not test any treatment, so it cannot directly improve outcomes. Results may not apply to all patients.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.