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Scientists track devastating rare diseases in search for clues

NCT ID NCT00029965

Summary

This study aims to learn how a group of rare, fatal brain disorders progress over time. Researchers will observe up to 200 people with these conditions to track symptoms and look for biological markers in blood and other samples. The goal is to gather essential information to help design future treatment trials, as there are currently no effective therapies for these diseases.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.