Study to measure care quality for young cancer patients, but was withdrawn
NCT ID NCT07484282
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study was designed to understand how well the healthcare system supports adolescents and young adults (ages 12-39) living with advanced cancer. Researchers planned to survey patients, caregivers, and clinicians about their experiences with emotional, spiritual, and communication support. The goal was to identify gaps in care and disparities among racial and ethnic groups. However, the study was withdrawn before enrolling any participants.
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Study facts
What this study's own registry entry says, in plain language.
- Expected to start
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Apr 2026
An estimate. Start dates often move.
- Expected to finish
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Apr 2029
An estimate. End dates often move.
- Lead sponsor
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A government research agency
The lead sponsor is the US National Institutes of Health.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
adolescent and young adult patients 12-39 years old. Caregivers and clinicians 18yrs and older
- Ages
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12 to 120 years
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
* ELIGIBILITY CRITERIA: * Stakeholder Panel: Patients * Ages 12-39y, inclusive * English- or Spanish-speaking and reading * Living with stage IV or recurrent cancer Caregivers * Must be actively involved in the care of an AYA patient * English- or Spanish-speaking and reading Clinicians * Must care for AYA patients * Can be of any discipline, including oncologists, nurses, social workers, psychologists, and chaplains. -Surveys and Interviews (Aims 1 and 2): * Patients ages 12-39y, inclusive * English- or Spanish-speaking and reading * Living with stage IV or recurrent cancer Survey Notes: 1) For AYAs \<18y, family caregivers will be asked to respond to survey questions. For AYAs \>=18y, family caregiver participation is optional. 2) Patients will be eligible without respect to timing of diagnosis or recurrence as long as they are living with advanced disease. Interview Notes: 1) Survey participants will be eligible at the time of completion of the final survey; AYAs who did not participate in surveys (e.g., if enrollment to the survey cohort is already complete) will also be eligible. 2) Patients will be eligible without respect to timing of diagnosis or recurrence as long as they are living with advanced disease.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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National Institutes of Health Clinical Center
Bethesda, Maryland, 20892, United States
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Other studies related to the condition(s) this trial covers.
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