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New study tracks cancer risk in kids with rare gene mutation

NCT ID NCT06805734

First seen Feb 12, 2026 · Last updated Jun 17, 2026 · Updated 17 times

Summary

This study follows 50 children with PTEN gene changes to understand their risk of developing tumors. Over 5 years, kids get yearly check-ups including blood tests, ultrasounds, and skin exams to screen for cancer. The goal is to create better monitoring guidelines for these children and compare their risks to adult relatives with the same gene change.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Fondazione IRCCS Istituto Neurologico Carlo Besta

    RECRUITING

    Milan, 20133, Italy

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

The condition(s) this trial relates to.

Cowden disease PTEN hamartoma tumor syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.