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Lupus Doesn't just hurt the patient – new study looks at the toll on couples

NCT ID NCT03913754

First seen Nov 01, 2025 · Last updated Jun 23, 2026 · Updated 34 times

Summary

This study looked at 160 adults with lupus and their spouses to understand how the disease impacts their relationship, emotions, and daily life. Researchers used surveys and interviews to capture the physical, psychological, and social effects. The goal is to use these insights to create better support and education programs for both patients and their partners.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Assitance Publique Hôpitaux de Marseille

    Marseille, 13000, France

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could help doctors and caregivers better understand the emotional and social challenges of lupus, leading to improved support programs for patients and their partners.

What could go wrong

This is an observational study, not a treatment trial. It will not test any new drug or therapy, so it cannot directly improve health outcomes.

Conditions

The condition(s) this trial relates to.

lupus erythematosus systemic lupus erythematosus

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.