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Lupus Doesn't just hurt the patient – new study looks at the toll on couples

NCT ID NCT03913754

Knowledge-focused Sponsor: Assistance Publique Hopitaux De Marseille Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This study looked at how lupus, a chronic autoimmune disease, affects the emotional and social lives of 160 patients and their spouses. Researchers used interviews and questionnaires to understand the couple's experience, beliefs about the disease, and quality of life. The goal is to help doctors create better support and education programs for both patients and their partners.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this study could help doctors and caregivers better understand the emotional and social challenges lupus brings to couples, leading to improved support programs.
What could go wrong
This is an observational study that does not test a new treatment. It gathers information only, so it cannot directly change how lupus is treated.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

160 people

The number who actually took part.

Started

Jun 2019

Finished

Apr 2020

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

The population covered by the QuaNTi Psy-LUP project is that of patients monitored by the Lupus PACA Competence Center, and a cohort of SLE patients with renal impairment (WIN-Lupus trial).

Ages

18 years and older

Sex

Anyone

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Age\> 18 years * Presenting an LES according to ACR or SLICC criteria * Being followed in Marseille in Nephrology or Internal Medicine as part of the Competence Center Lupus PACA * Having agreed to participate in the study after information Exclusion Criteria: * Minor person * Person deprived of liberty * Person not affiliated to a social security scheme

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Conditions

The condition(s) this trial relates to.

lupus erythematosus systemic lupus erythematosus

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Lupus erythematosus

Contacts and locations

Locations

  • Assitance Publique Hôpitaux de Marseille

    Marseille, 13000, France

More trials for these conditions

Other studies related to the condition(s) this trial covers.