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New study uses community events to spark End-of-Life conversations

NCT ID NCT04612738

Knowledge-focused Sponsor: Milton S. Hershey Medical Center Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Sep 10, 2026 · Updated 2 times

Summary

This study aims to help people from underserved communities talk about their wishes for end-of-life care and complete advance directives. Researchers will use trusted community networks to host events where two conversation tools are tested. About 1500 adults will participate to see if these tools increase the number of people who document their care preferences.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

1,800 people

The number who actually took part.

Started

Mar 2022

Finished

Jul 2026

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria Community Hosts 1. Ability to recruit 20 individuals from underserved populations to attend a community event 2. Experience hosting a community event 3. Experience working with underserved populations 4. Participation in a series of mandatory live study-related web-based trainings 5. Completes a research site agreement Research Participants 1. Adults over the age of 18 years old in underserved populations 2. Able to speak and read English and/or Spanish 3. Have not completed an AD within the previous 5 years 4. All participants regardless of health status 5. Individuals from the same household can enroll Exclusion Criteria Community Hosts 1. Inability to recruit 20 individuals from underserved populations 2. Inexperience for hosting a community event 3. Inexperience working with underserved populations 4. Unable to attend a series of mandatory live study-related web-based trainings 5. Do not provide informed consent 6. Do not complete a research site agreement 7. Previously hosted a Hello project event Research Participants 1. Anyone \<18 years of age 2. Anyone not able to speak and read English and/or Spanish 3. Have significant difficulties with hearing or speaking difficulties by self-report 4. Completed an AD in the past 5 years 5. Do not provide informed consent

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Conditions

The condition(s) this trial relates to.

Chronic Disease Communication communication disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Advance care planning Advance directives Chronic illness Communication Terminal illness

Contacts and locations

Locations

  • Acadian Advocacy Network

    Lafayette, Louisiana, 70506, United States

  • Accord Health Group

    Show Low, Arizona, 85901, United States

  • All Saints Episcopal Church

    Cameron, Texas, 76520, United States

  • Atrium Health Wake Forest Baptist

    Winston-Salem, North Carolina, 27045, United States

  • Bluegrass Care Navigators

    Lexington, Kentucky, 40504, United States

  • Booker T. Washington CES

    Las Cruces, New Mexico, 88001, United States

  • Carmel Baptist Church

    Winchester, Virginia, 22601, United States

  • Center for Practical Bioethics

    Lawrence, Kansas, 66101, United States

  • Choice Hospice

    Sulphur Springs, Texas, 75482, United States

  • Christ Temple Church

    Muskegon Heights, Michigan, 49444, United States

  • City of Temple Terrace, Omar K. Lightfoot Center

    Temple Terrace, Florida, 33617, United States

  • Cleveland Clinic

    Akron, Ohio, 44307, United States

  • Colquitt Regional Medical Center

    Moultrie, Georgia, 31768, United States

  • Columbia Senior Activity Center

    Columbia, Missouri, 65201, United States

  • Community Economic Development Center

    New Bedford, Massachusetts, 02746, United States

  • Como Community Center

    Fort Worth, Texas, 76107, United States

  • Corsi Senior Center

    New York, New York, 10029, United States

  • DeSoto Memorial Hospital

    Arcadia, Florida, 34266, United States

  • Dorothea Street Community Center

    Crane, Texas, 79731, United States

  • East End Community Center

    Portland, Maine, 04101, United States

  • Eastside Fellowship Ministries

    Columbus, Ohio, 43203, United States

  • El Rio Neighborhood Center

    Tucson, Arizona, 85745, United States

  • Elder Law Project of North Mississippi Rural Legal Services

    Oxford, Mississippi, 38655, United States

  • First Baptist Church

    Quincy, Illinois, 62301, United States

  • Georgetown Public Library

    Georgetown, Texas, 78626, United States

  • Gilmer County Senior Center

    Ellijay, Georgia, 30540, United States

  • Good Hope Union UMC

    Silver Spring, Maryland, 20905, United States

  • Grayland Hall

    Grayland, Washington, 98547, United States

  • Greater Vision United Methodist Church

    Huntersville, North Carolina, 28078, United States

  • Grove Hall Senior Center

    Boston, Massachusetts, 02121, United States

  • Helene S. Mills

    Atlanta, Georgia, 30328, United States

  • High Point Neighborhood Family Center

    Clearwater, Florida, 33760, United States

  • Holy Cross Health

    Silver Spring, Maryland, 20910, United States

  • Hope Behavioral Health

    Cleveland, Ohio, 44120, United States

  • HopeWest Montrose

    Montrose, Colorado, 81401, United States

  • Hospice & Home Care of Reno

    Hutchinson, Kansas, 67501, United States

  • Hospice Care of Middletown

    Middletown, Ohio, 45044, United States

  • Hospice and Community Care

    Lancaster, Pennsylvania, 17602, United States

  • Hospice and Community Care

    Lancaster, Pennsylvania, 17603, United States

  • Hospice of Lake Cumberland

    Somerset, Kentucky, 42503, United States

  • Hospice of St. Lawrence Valley

    Potsdam, New York, 13676, United States

  • Hospice of the Western Reserve

    Cleveland, Ohio, 44110, United States

  • Hospital Council of Northwest Ohio

    Toledo, Ohio, 43607, United States

  • Kingman Regional Medical Center

    Kingman, Arizona, 86409, United States

  • Latino Hispanic American Community Center

    Harrisburg, Pennsylvania, 17104, United States

  • Lightways Hospice & Serious Illness Care

    Joilet, Illinois, 60435, United States

  • Luray Fire Department

    Luray, Virginia, 22835, United States

  • McGregor Gardens

    Cleveland, Ohio, 44112, United States

  • MedStar Washington Hospital Center

    Washington D.C., District of Columbia, 20020, United States

  • Northeast Mississippi Coalition Against COVID-19

    Belden, Mississippi, 38868, United States

  • Ocean Beach Hospital

    Ilwaco, Washington, 98640, United States

  • Ohio County Senior Centers

    Hartford, Kentucky, 42347, United States

  • Our Lady of Solitude

    Soledad, California, 93960, United States

  • Patch Center

    St Louis, Missouri, 63111, United States

  • People's Community Baptist Church

    Harrisburg, Pennsylvania, 17104, United States

  • Phoebe Putney Memorial Hospital

    Albany, Georgia, 61763, United States

  • Pincham-Lincoln Community Center

    Athens, Alabama, 35611, United States

  • Plaza on Princess

    Wilmington, North Carolina, 28401, United States

  • Promotores y Promotoras

    Santa Paula, California, 93060, United States

  • Reformed Church of Freehold

    Freehold, New Jersey, 07728, United States

  • Seniors First of GA

    Atlanta, Georgia, 30345, United States

  • St. Mark Missionary Baptist Church

    Bennettsville, South Carolina, 29512, United States

  • St. Mary's Health System

    Lewiston, Maine, 04240, United States

  • St. Phillip AME Church

    Tallahassee, Florida, 32308, United States

  • St. Thomas the Apostle Catholic Church

    Crystal Lake, Illinois, 60014, United States

  • Stamford Senior Center

    Stamford, Connecticut, 06901, United States

  • Stuart Community Center

    Carlisle, Pennsylvania, 17013, United States

  • Sunshine Terrace Foundation

    Logan, Utah, 84321, United States

  • Trinity Lutheran Church

    Cherokee, Iowa, 51012, United States

  • Turner Alumni Association

    Carthage, Texas, 75633, United States

  • Union County Senior Services

    Morganfield, Kentucky, 42437, United States

  • United Crescent Hill Ministries

    Louisville, Kentucky, 40206, United States

  • University of Chicago Medical Ctr

    Chicago, Illinois, 60616, United States

  • University of Colorado Hospital

    Aurora, Colorado, 80045, United States

  • University of Rochester Medical Center

    Rochester, New York, 14622, United States

  • Villa Schiano

    Elizabethville, Pennsylvania, 17023, United States

  • Vitas

    Walnut Creek, California, 94590, United States

  • Washoe Tribe Health Center

    Gardnerville, Nevada, 89410, United States

  • Welcome Home of Chattanooga

    Chattanooga, Tennessee, 37406, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.