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New study aims to make exercise safer for kids with cystic fibrosis, sickle cell, and long COVID

NCT ID NCT05359991

First seen Mar 27, 2026 · Last updated Jun 23, 2026 · Updated 17 times

Summary

This study is creating better ways to test exercise in children with cystic fibrosis, sickle cell disease, or long COVID. Current tests are designed for healthy athletes and may not be safe or useful for these kids. Researchers will track 240 children over 3-4 years, measuring how their bodies respond to exercise, to develop new guidelines for safe physical activity.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • University of California, Irvine

    RECRUITING

    Irvine, California, 92697, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could lead to safer, more accurate exercise guidelines for children with chronic diseases, helping them stay active without harm.

What could go wrong

This is an observational study, not testing a treatment. It may not directly change care, and results depend on children completing annual tests over several years.

Conditions

The condition(s) this trial relates to.

COVID-19 cystic fibrosis sickle cell disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.