Massive study tracks rare blood disease in over 6,000 patients
NCT ID NCT01374360
Summary
This study collected health information from over 6,000 people with paroxysmal nocturnal hemoglobinuria (PNH), a rare blood disease. The goal was to track how the disease progresses over time and monitor the safety of treatments like Soliris and Ultomiris. It was an observational registry, meaning it collected data but did not test a new treatment.
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Contacts and locations
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Locations
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Contact the PNH Registry at Alexion Pharmaceuticals, Inc. for worldwide locations.
Boston, Massachusetts, 02210, United States
Conditions
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