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Pemphigus study reveals hidden struggles beyond skin deep

NCT ID NCT02237313

First seen Feb 05, 2026 · Last updated May 16, 2026 · Updated 14 times

Summary

This study looked at why some people with pemphigus, a rare skin disease, feel more vulnerable than others. Researchers interviewed 48 patients to understand how misdiagnosis, disagreements with doctors, and use of health information affect their experience. The goal was to identify factors that make coping harder, not to test a new treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • CH du Mans

    Le Mans, 72037, France

  • CHRU de Lille Hôpital Claude Huriez

    Lille, 59037, France

  • CHU de Clermont-Ferrand Hôpital d'Estaing

    Clermont-Ferrand, 63003, France

  • Centre hospitalier de Cornouaille

    Quimper, 29107, France

  • Hôpital Avicenne

    Bobigny, 93000, France

  • Hôpital Haut-Lévêque

    Pessac, 33604, France

  • Hôpital La Timone, Assistance publique hôpitaux de Marseille-Aix

    Marseille, France

  • Hôpital Robert Debré, chu de Reims

    Reims, 51 092, France

  • University Hospital of Rouen

    Rouen, 76031, France

Conditions

Explore the condition pages connected to this study.