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Tracking babies born to mothers on rare disease drug

NCT ID NCT05040373

Summary

This study aims to collect information about pregnancy outcomes in women who took patisiran-LNP medication for hereditary amyloidosis. Researchers will track birth defects, pregnancy complications, and infant health. The goal is to understand the safety of this medication during pregnancy by observing real-world outcomes.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Clinical Trial Site

    RECRUITING

    Iowa City, Iowa, 52242, United States

  • Clinical Trial Site

    RECRUITING

    Nantes, France

  • Clinical Trial Site

    RECRUITING

    Münster, Germany

  • Clinical Trial Site

    RECRUITING

    Pavia, Italy

  • Clinical Trial Site

    RECRUITING

    Groningen, Netherlands

  • Clinical Trial Site

    RECRUITING

    Lisbon, Portugal

  • Clinical Trial Site

    RECRUITING

    Madrid, Spain

Conditions

Explore the condition pages connected to this study.