Families speak out: what we want to know from genetic testing
NCT ID NCT02814747
Summary
This study explored how families of children with rare developmental disorders feel about receiving different types of genetic test results. Researchers surveyed and interviewed 530 parents in France to understand their preferences about what information they want from advanced genetic testing. The goal was to improve how doctors communicate complex genetic findings to families before these tests become routine in clinical care.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for RARE DISEASES are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Locations
-
CHU Dijon Bourgogne
Dijon, 21079, France
Conditions
Explore the condition pages connected to this study.