Long-Term study reveals how brittle bone disease progresses over time
NCT ID NCT00001594
First seen Oct 01, 2025 · Last updated May 22, 2026 · Updated 28 times
Summary
This study followed 88 children and young adults with types III and IV osteogenesis imperfecta (brittle bone disease) to learn how the condition affects the body over time. Researchers tracked bone health, lung and heart function, hearing, and movement. The goal was to better understand the disease and improve monitoring and care, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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National Institutes of Health Clinical Center
Bethesda, Maryland, 20892, United States
Conditions
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