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Do kids with a rare lung condition face hidden muscle loss?

NCT ID NCT07740551

Knowledge-focused Sponsor: Izmir Democracy University Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting This study
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jul 31, 2026 · Last updated Jul 31, 2026

Summary

This study asks whether children and adolescents with primary ciliary dyskinesia (PCD) — a rare condition affecting the lungs — have poorer nutrition and muscle health than healthy children their age. Researchers will measure hand grip strength, jump power, and other physical and nutritional markers in about 30 participants aged 6 to 18. By comparing the two groups, the study aims to reveal whether children with PCD are at higher risk for malnutrition or sarcopenia (muscle loss), which could guide future care.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Physical evaluations (nutritional and muscle function assessments) — no drug or device is being tested.
What this could lead to
If differences are found, it could point toward targeted nutrition and exercise support to improve muscle health in children with PCD.
What could go wrong
This is a small observational study, so findings may not apply to all children with PCD. It measures associations, not causes, and cannot prove that PCD leads to malnutrition or sarcopenia.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 30 people

The number the study aims to enrol. It can still change while the study runs.

Expected to start

Aug 2026

An estimate. Start dates often move.

Expected to finish

Aug 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

At least 15 patients with primary ciliary dyskinesia will be included in the main group and at least 15 healthy individuals will be included in the control group.

Ages

6 to 18 years

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria for Children and Adolescents with Primary Ciliary Dyskinesia: * To be between the ages of 6-18 * To have been diagnosed with primary ciliary dyskinesia * To be clinically stable for at least 3 weeks * To have the necessary cooperation for the measurements * To volunteer to participate in the study Inclusion Criteria for Healthy Children and Adolescents: * To be between the ages of 6-18 * To be in a similar average and ratio with the group of children and adolescents with primary ciliary dyskinesia in terms of age and gender * To have the necessary cooperation for the measurements * To volunteer to participate in the study Exclusion Criteria for Children and Adolescents with Primary Ciliary Dyskinesia: * Having any orthopedic, neurological, psychological or cardiovascular problem that may prevent the measurements from being performed in the last 6 months * Smoking or quitting smoking Exclusion Criteria for Healthy Children and Adolescents: * Having any orthopedic, neurological, psychological or cardiovascular problem that may prevent the measurements from being performed in the last 6 months * Having any chronic disease * Smoking or quitting smoking

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Conditions

The condition(s) this trial relates to.

primary ciliary dyskinesia Sarcopenia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Primary ciliary dyskinesia (PCD)

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    1 site. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Izmir Democracy University

    Izmir, 35140, Turkey (Türkiye)

More trials for these conditions

Other studies related to the condition(s) this trial covers.