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Online help for NF1 patients: videos vs. peer support

NCT ID NCT07233408

Summary

This study is testing two different online approaches to help adults with Neurofibromatosis 1 (NF1) better understand their condition and recommended care. Researchers will provide personalized care letters and then randomly assign participants to either watch educational videos or have a call with a peer who also has NF1. The goal is to see which approach works better for people who find medical information challenging to understand.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Massachusetts General Hospital

    RECRUITING

    Boston, Massachusetts, 02114, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.