Remote study aims to bridge care gap for thousands with genetic disorder
NCT ID NCT06262113
Summary
This study is comparing two different educational programs to see which one better helps people with Neurofibromatosis 1 (NF1) get the recommended health screenings during their regular doctor visits. The research is conducted entirely online with adults who have NF1 or parents of children with NF1 who don't go to specialized NF clinics. Participants receive educational materials for themselves and their doctors, then report on their healthcare experiences.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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