New registry tracks rare skin and brain condition to unlock clues
NCT ID NCT04548817
First seen Nov 01, 2025 · Last updated Apr 30, 2026 · Updated 26 times
Summary
This study gathers medical information from up to 100 people worldwide who have large dark skin patches present at birth or a related brain condition called neurocutaneous melanocytosis. Researchers will review past and future medical records to learn more about the disease, its treatments, and outcomes. No new treatments or tests are given—only existing medical data is collected.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Boston Children's Hospital (Data Analysis Only)
NOT_YET_RECRUITINGBoston, Massachusetts, 02115, United States
Contact Phone: •••-•••-••••
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Memorial Sloan Kettering Cancer Center (All Protocol Activities)
RECRUITINGNew York, New York, 10065, United States
Contact Phone: •••-•••-••••
Conditions
Explore the condition pages connected to this study.