New study aims to better measure muscle function in kids with rare muscular dystrophy
NCT ID NCT06847282
First seen Feb 28, 2026 · Last updated May 25, 2026 · Updated 9 times
Summary
This study is for children aged 5 to 17 with a confirmed diagnosis of FSHD, a type of muscular dystrophy. Researchers want to see if certain tests, like the FSHD-COM and reachable workspace, are good ways to measure muscle function in kids. The goal is to improve how future clinical trials are designed for this condition. No experimental treatments are given in this study.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Locations
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Duke University
RECRUITINGDurham, North Carolina, 27708, United States
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Murdoch Children's Research Institute
RECRUITINGMelbourne, Australia
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Stanford University
NOT_YET_RECRUITINGPalo Alto, California, 94304, United States
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University of Iowa
NOT_YET_RECRUITINGIowa City, Iowa, 52242, United States
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University of Kansas Medical Center
RECRUITINGKansas City, Kansas, 66160, United States
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University of Rochester
RECRUITINGRochester, New York, 14642, United States
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University of Utah
NOT_YET_RECRUITINGSalt Lake City, Utah, 84112, United States
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Conditions
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